ronjhall
Super Star Member
Sorry to hear this. Prayers for your friend, family and friendsI found out yesterday that a very good friend was diagnosed with ALS, I still in shock.
While my wife has one of the outer edges of ALS it is still creates a lot of depression. Your friend will need a lot of support. We found that finding the right doctor is very important. To many of them want to treat it like any other disease.
There is a new USA approved drug out that has found good results overseas. Wife’s doctor is working on getting her on the list.
Another thing we found out is true ALS has upper and lower neurological conditions. Currently my wife only has upper.
Hope your friend has gotten a second opinion. We were very happy with the testing and care we got at Mayo Clinic.