Dealing with an elderly parent or relative.

   / Dealing with an elderly parent or relative. #41  
I can't really offer any advice on parents who are difficult because of what their personality is like. That is something that has to be worked out between folks. Certainly anybody with a difficult personality is going to be more difficult if they are sick, aging or disabled.

But I wanted to address what someone said above about dementia patients losing their social filters and their real personality coming out. I think this is very true, however, it is not always the case. For many patients with dementia it is not just a lack of filters but a lack of ability to process and respond to social cues in the complex form of behaviors that we associate with social appropriateness. They often lose the ability to find and form appropriate words and resort to simpler more direct responses. This inability itself can generate anger and frustration. But, there are other factors that come into play. In various forms of dementia and even as a result of some medications the patient may have delusions, hallucinations and impaired reality testing. What they see and hear might not coincide with what we see and here.

The point of saying all this is to avoid the pitfall of blaming the patient for such behaviors. Surely bad aspects of a patients personality can be unmasked by dementia but often times they have little control over their perceptions or responses to them.

My father had delusions that made him violent. He was not really mad at us but he often percieved that there were people in the house, or that someone had beaten him or threatened him. He would get made at us when we did not respond to what here thought was an imminent danger to all of us (like an intruder). At other times he did not recognize us and thought we were the intruder. This made his care difficult, exhausting and frightening for my mother but it was very clear that we were not seeing a dark side of his personality but the result of delusions and altered reality testing. Having a 6'3" violent male parent is extremely difficult. Very, very few facilities are equipped to handle such patients and non of them, even the very best, have any really good solutions.

Some demetia patients also demonstrate inappropriate sexual behavior. This is also incredibly difficult, for obvious reasons but also because it is so embarrassing for family members and caregivers. It is hard for them to explain to others why they have had to resort to a memory care facility rather than keeping them at home when they do not appear to be terribly ill or demented.
 
   / Dealing with an elderly parent or relative. #42  
Get out the calculator and read the fine print in regard to long term health insurance. Some plans are better than others but with many of them there are countless exclusions and time limits that make them not worth the money. You may need an advisor to help you sort it all out but in some cases you'd be better off investing that money in something safe (?!?) rather than spending it on a plan that has been very carefully designed to promise a lot and pay out very little.

I've only seen the policies State Farm, GM, and Hancock. Most states have what is called Long-Term Care Insurance Partnership plans, which means they are the same product, more or less. Long Term care is actually one of the more simple policies to understand and is written in extra large print in the policies I have seen, no fine print. So the intent of paying out little is misleading in the 30 states that participate in the partnership. The other 20 states I can't comment on. The biggest factor is the cost, because they are expensive because of the percentage of policies that do pay out. In many cases people view them as cost prohibitive, and I can understand that since I hate writing the check myself. I just don't want to be caught in a situation where I am looking for care or forcing myself on someone else later in life.
 
   / Dealing with an elderly parent or relative.
  • Thread Starter
#43  
Thought I would bring this back to the top because there has been quite a bit of interest in the subject. We did get my mother into a nursing home after another hospital stay that lasted the required three days/nights so that medicare covers the first 100 days. It had so happened that a bed had opened where we had wanted to take her in the middle of her hospital stay.

So far though, not so good. My mother hates it. She has herself shut down pretty much. She was so bad yesterday, we thought that she had had a stroke but the nurses assured us that she had not. I had just stopped at the AT&T store and got a senior friendly phone added to my plan for her too. O'well. Today there was some improvement so we left the phone thinking perhaps it will intice her some to use it. Perhaps it was the wallpaper photo on the phone of her favorite dog we have that I put up?

Overall, we are pleased with the home we found. There is plenty of staff and they are all very friendly and seem to take everything in stride in spite of the fact that it is what it is, a place for folks to live out their final days. We are going to take a TV in the next visit to see if that helps any. I think if we can get her through these first few weeks until she accepts her surroundings, it will be okay.

I have to speak with a lawyer now about power of attorney which we do not have yet though she does have a do not resuscitate filed. With her being so out of it, we have had to take over her checkbook which we had already had our names on. She has some credit card debt which in the end will not get paid. Mostly, I have to find out if the nursing home gets first "dibs" on her SS check if we get through the 100 day period.

I will say, my wife who has her own medical issues is a lot more relaxed not having to butt heads with my mother. (I guess it was one of those things were the spouse never quites meet mom's expectations?) We are going through mom's meager belongings sorting out and boxing things to pass on to others in the family eventually. I do not believe she will ever come back home but we are keeping that thought in mind so we coulld get her back to her comfort zone.

Still, it looks like we will have to make the 20 plus mile trip to the home on my few days off from work regularly. It is what it is so we gladly will do it.
 
   / Dealing with an elderly parent or relative. #44  
I know I wont gain many friends by saying this but we should always take responsibility for ourselves. Plan way ahead-you know you may be in this situation so why put your children through ****-it should not be their responsibiliy to bare.

I have a couple of plans-one is a nice home for the elderly that has 24 hour staff and nice scenary, the other is the veterans home and finally a third is to take a long walk in the woods-a one way trip if you will.

I dont want to have my kid remember our last moments as being a burdan-especially in hard times like this. Take responsiblity for ourselves and dont place it on your kids shoulders. Thats my motto!
 
   / Dealing with an elderly parent or relative. #45  
I know I wont gain many friends by saying this but we should always take responsibility for ourselves. Plan way ahead-you know you may be in this situation so why put your children through ****-it should not be their responsibiliy to bare.

I have a couple of plans-one is a nice home for the elderly that has 24 hour staff and nice scenary, the other is the veterans home and finally a third is to take a long walk in the woods-a one way trip if you will.

I dont want to have my kid remember our last moments as being a burdan-especially in hard times like this. Take responsiblity for ourselves and dont place it on your kids shoulders. Thats my motto!

Good point. I have never talked to friends my age who say they want to spend the last 3-5 years of their life living in some senseless h***. But I bet many of them will. That's no way to die IMHO. It's an ethics problem we haven't addressed very well. I never have figured out the objection so many have to "death with dignity," as it is known.
 
   / Dealing with an elderly parent or relative. #46  
In sept of 2006 we lost my grandmother. After ten years of serious physical health issues. We knew before that point that my grandfather had some mental illness. To what extent we didnt know at that point. We would have to repeat some things for him but nothing serious. The very night that his wife died he wanted to run. So that started the next 5 years of a living **** for both me and him.

I am now 28, i was 22 at the time when she died. He became more aggressive day by day. To the point where i had to take all weapons out of the house. He would drink, couldnt stop him. I took the booze out of the house he would throw a fit for days on end. He ended up loosing his d/l.

We had to lock all keys up so that he couldnt get to them. He would take off on some fit of rage and end up in trouble. One day he ended up at the police station threatening to kill the cops. It continued that way for about 3 years, then his son got involved. My grandfather went to live with him and with in two weeks in flordia they couldnt control him. He had nothing and no nursing home would take him. His care would be 5000+ a month.

Long story short, he ended up bouncing between family that in the end he exiled all of them. I put him in to a va nursing home. He had been diagnosed with Althemizers, Dementia, White Matter Disease, Sun Downers.

In the early morning his memory was perfect but past 12pm it would go down hill and his personailty would be night and day difference. One of the dr's that we had went to, was more concerned with my mental health then his at that point. After 4 years of taking care of him almost by my self i was loosing it. His violence and everything else. He died in the spring of 2010 in the va home. With everything that happened i couldnt bring my self to even go to the funeral. It took a year after his death to settle all of his business.

I agree that when some one gets to that point in their life, their life is over. There is no reason for them to be tortured every day by their mental illness. I try to explain to my friends what to except if it happens to their parents. I would do it again if i had to. How ever i know the toll it took my health and psyche. As for ended their lives i dont want to open up that discussion at this point. You have to ask for help no one can do it by them selves. I know for a fact if some one tells you they can do it by them selves they have never dealt with a mentally sick family member.
 
   / Dealing with an elderly parent or relative. #47  
Your a good guy and that is rare. I'm sorry you had to deal with this so young in life. That must have been impossible for you.
 
   / Dealing with an elderly parent or relative. #48  
I have my older inlaws living on my property, Put in a triple wide about 13 years ago for them, my FIL is in good shape, but MIL, is going down slowly. It"s going to be tough when they are gone, But they both have long term Ins, and it has helped as the MIL has had to spend several months in one after a broken hip. They are in there early 70's. My father is now 96 qnd is sharp as a tack. But these are things that I will have to deal with in the near future.
 
   / Dealing with an elderly parent or relative.
  • Thread Starter
#49  
Well, my mother seemed to be taking going to the hospital in stride but after two days she was saying she was sick and needed to go back to the hospital though her vitals were fine. We figured it was just a reaction to the shock of going into a home. Two days, I pick up another cell phone on my account for her to use and when we get to the home she cannot talk. It was like she had a stroke or something. As she continued to shut down more and more the next few days, the nurses would check and all her vitals were normal.

During this, I get a letter from the home that because she is not participating in therapy that medicare will not pay. While I am working that issue through arbitration, what I found out is bascially, medicare will cover up to 100 days but the patient must be participating and responding to therapy. After that it goes to where ever the money can come from which in my mother's case would be her SS check. It just is probably going to happen sooner.

My wife and I discussed my mother who seemed to be fading quickly and the possible loss of medicare. Being our names are on her checking account in order to easily sign checks while shopping for her, etc. we withdrew most of her recent SS check and moved it into our account. We then went to a funeral home and prepaid for a cremation as is her wish when the time comes. We have a little left to pay her medicare suppllement for now, etc. but the credit card payment she has is going to have to wait. Oh' well. Neither we or anyone else in the family is in any financial shape to carry any of this.

Then, the doctor ordered tests which meant a trip back to ER. They found her to be dehydrated, she has a UTI, and some renal failure. Yet, they said the vitals showed normal. So, she is at the hospital for now while they try to get things under control. We cannot necessarily blame the home since she was refusing food and drink, etc.
 
   / Dealing with an elderly parent or relative. #50  
I am sorry for your predicament I have no wife or anyone else other then my mother and father. They are everything to me when they are gone so I will be. It is a sorry state of affairs that those that never contributed to anything are given preference. My father a veteran of WW2 has to pay more then a slug on welfare, my mother always there always faithful treated less then some **** with many kids none having the same father. Your parents should have first priority with the government. All this talk about healthcare is only for the slime, nothing for the real people. Be strong do as much as you can, have faith
 

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