Diabetes

   / Diabetes #322  
Unless your body is telling you something through pain or general unwellness I wouldn't worry about it.
I'm trying to walk every day and drink at least 1/2 gallon of water each day.
Other than that I try to avoid doctors and hospitals at all costs since statistically they are one of the leading causes of death.
 
   / Diabetes #325  
To much of anything is bad. As is being inactive or overweight.
Good thing there is no definition of "too much". That way everyone can set their own amounts. Oh wait, everyone does anyway.
 
   / Diabetes #326  
The CGM, definitely discourages cheating: Having the thing beeping every five minutes, definitely makes you think about whether the cheat is worth the hassles.
Sometimes I wonder if everybody in my exwife's household shuts the alerts off for my type 1 son. I have my alerts set at 180 to go off after 3 hours above. I get to listen to it A LOT. He is currently 243 arrow straight up.
 
   / Diabetes #327  
Sometimes I wonder if everybody in my exwife's household shuts the alerts off for my type 1 son. I have my alerts set at 180 to go off after 3 hours above. I get to listen to it A LOT. He is currently 243 arrow straight up.
That's not good. Is he a growing juvenile?
 
   / Diabetes #328  
That's not good. Is he a growing juvenile?
15 years old coming up on 3 years in July diagnosed. Lives 8 hours away. I get approx. 49 days with him each year to try to instill good habits. TIR was 52% last year. His best numbers are when he is here and we can see how the changes the doctors make to his calibrations effect him here. And yet he can't break the 50%TIR at home. He has a 64% TIR for 1 month when here with me. After a November calibration change we had 3 day groups pushing 90% TIR. 1 week mid 70% TIR. 5 hours after leaving my custody he is in the 400's. Chart stops at 400. Sure would like to know how HIGH it actually gets. Daily 300's with 400's being common. Dr. goal is 65% and yet nobody talks about it. Lots of talk of whether calculating carbs correctly and even a retraining session for them that was decided it wasn't needed. But there is nothing to confirm or deny the issue. They just keep repeating possible mistakes over and over again. Doctors are not interested in my data, How the changes they made effects him. As I type this he is 247 level. Peaked at 309 at 1:22pm from a low of 71 at 11:28am after coming off his breakfast high of 307 at 8:30am.
 
   / Diabetes #329  
15 years old coming up on 3 years in July diagnosed. Lives 8 hours away. I get approx. 49 days with him each year to try to instill good habits. TIR was 52% last year. His best numbers are when he is here and we can see how the changes the doctors make to his calibrations effect him here. And yet he can't break the 50%TIR at home. He has a 64% TIR for 1 month when here with me. After a November calibration change we had 3 day groups pushing 90% TIR. 1 week mid 70% TIR. 5 hours after leaving my custody he is in the 400's. Chart stops at 400. Sure would like to know how HIGH it actually gets. Daily 300's with 400's being common. Dr. goal is 65% and yet nobody talks about it. Lots of talk of whether calculating carbs correctly and even a retraining session for them that was decided it wasn't needed. But there is nothing to confirm or deny the issue. They just keep repeating possible mistakes over and over again. Doctors are not interested in my data, How the changes they made effects him. As I type this he is 247 level. Peaked at 309 at 1:22pm from a low of 71 at 11:28am after coming off his breakfast high of 307 at 8:30am.
It would be hard dealing with something like that. The saving grace is he is getting old enough to start taking control himself. I’d be giving him age appropriate books and articles, and finding web links for him.

I have a simple technique which works well for me. I take the total carbs, and subtract the fiber to “net carbs”, than add the total sugar back in, and then add the “added sugar” to that, which gives me what I call reactive carbs. And then keep the reactive carbs below the thirty grams of carbs I try to eat for every meal.
 
   / Diabetes #330  
It would be hard dealing with something like that. The saving grace is he is getting old enough to start taking control himself. I’d be giving him age appropriate books and articles, and finding web links for him.

I have a simple technique which works well for me. I take the total carbs, and subtract the fiber to “net carbs”, than add the total sugar back in, and then add the “added sugar” to that, which gives me what I call reactive carbs. And then keep the reactive carbs below the thirty grams of carbs I try to eat for every meal.
If he can break the apron strings that keep getting cinched tighter. We track everything here and when we question him on where he gets his carb number from for something that is way off. He says mom. He recognizes the difference in numbers. Once asked me why his numbers are different here than at home. We do go over the data from his pump and he is interested in it but if an example from home comes up he shuts down. It is a lot.
 
   / Diabetes
  • Thread Starter
#331  
5 hours after leaving my custody he is in the 400's.

I wonder if he has a stash of something he hits when he gets home
maybe find a healthier alternative?
had to look up TIR, time in range, I guess meaning how much of the day one is healthy and how much of day one goes out of range
 
   / Diabetes #332  
If he can break the apron strings that keep getting cinched tighter. We track everything here and when we question him on where he gets his carb number from for something that is way off. He says mom. He recognizes the difference in numbers. Once asked me why his numbers are different here than at home. We do go over the data from his pump and he is interested in it but if an example from home comes up he shuts down. It is a lot.
Sorry to hear about your son being leveraged by the mom. At 15 he can decided to live with you and the courts can't do anything about it.
 
   / Diabetes #333  
5 hours after leaving my custody he is in the 400's.

I wonder if he has a stash of something he hits when he gets home
maybe find a healthier alternative?
had to look up TIR, time in range, I guess meaning how much of the day one is healthy and how much of day one goes out of range
No. It is a 8 hour drive. Eats out or other and that is where we feel incorrect calculations are taking place. It is always under calculated. Lots of data to point to the issue just ignored. Doctors can only work with the information given. I feel the doctors don't push hard enough to make sure information is correct and never do I hear of the health risks if he continues this path. And when I am at these appointments any information or data I present is completely disregarded.
 
   / Diabetes #335  
I thought CGM use with a pump, was now the norm?
It depends on how severe things are. Some Diabetics, even type 1s, are still producing insulin but ithe cells are resisting it. The cgm can have a pump slaved to it.

Or, it can just be a lot more data, and teh ability for near instant feed back. Mine sends a reading to the reciever and my iPhone once very five minutes, 24-7. If you’re paying attention to it, you learn to tell how many carbs your in taking by what happens to your reading over the next couple of hours, and if you are too high, or too low will alarm. Things like when it wakes you up at 0200, because you are down to sixty, you need to eat a bit of fruit, some cheese and a few nuts. If you eat too much fruit, then an hour and a half later when you are almost back to sleep it goes into high level alarm.

At fifteen he should be taking over his own management. it is lots easier now with a CGM, than it was twenty years ago using finger stabs to get a blood drop the size of a pinhead. And that was easier than the 70s, when my father got his first glucosemeter, which required a drop of blood the size of a match head. And that was far easier than the piss strips, and monthly blood draws he had before that.

At his point the young man needs to start learning to handle it himself. There are good books, and good videos out there, and diabetes support groups which can be a big help when you are learning.
 
   / Diabetes #336  
He is a bright kid and should have this down but feel he is held back from doing so. In several correspondence she uses his diabetes as a punishment saying "he can't manage it". One thing he has been wanting to do is get a job. Here is a typical week followed by a week here. The 400 on Christmas week was after back in her custody.


1681982795209.png




1681983003421.png


With the last day removed. When he is here we work on being proactive with lows. He is reactive and once it is past a point takes a bit to get him back in.

1681983206651.png
 
   / Diabetes #337  
   / Diabetes #338  

Diabetic Mayor looses sight but reverses it with diet.
I don't believe it. Seems his doctors told him "he would loose his eye sigth and health" if he didn't clean up his diet. Not reverse blindness.
 
   / Diabetes #339  
I don't believe it. Seems his doctors told him "he would loose his eye sigth and health" if he didn't clean up his diet. Not reverse blindness.

It was eyesight in one eye.
“Three weeks after converting to a herbivorous diet, Adams regained his vision. Three months later, the nerve damage to his extremities disappeared and his diabetes went into remission.”
 
   / Diabetes #340  

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