Dealing with doctors is so frustrating because so many of them can't or won't explain what they are doing and why they are doing it. It is also frustrating to try to pick a good one and having to rely on a family doctor to make a good referral. They don't always really know the qualifications of the specialist and sometimes the referrals are made because their hospital has some common business affiliation with the specialist. You almost need a doctor to pick a doctor. I was hoping you knew someone who could guide you to a doctor that you'd feel more comfortable with.
I suspect it's difficult to know what to say to Kelsey when the doctors have left you wondering yourself.
I agree with you 100% about doctors..(I went through it myself with my wrist)
The doctors want to do all these test and not explain nothing...OR try to hide something from you.
Right now I'm just going to wait and see if she ask me or my wife about cancer, and if she does then we can tell her the results of the "NBS" test.
But they will be doing more test.(we expect a cat-scan)
CORRECTION: ...... after re-reading my last post, I feel I should add that although it sounded like a pretty strong suggestion,...in reality I was really just thinking out loud.
BUT, I would like to say I very strongly agree with Bird,..that we are not familiar enough with the family to make suggestions like mine,...and OF COURSE, those types of decisions should be left to the "parents" who "know" Kelsey.
The very, very best wishes to "you" Bill, and your family,...God Bless!
. . . tug
You wasn't thinking out loud
It's one of those things,
Should i tell her, OR..maybe i shouldn't tell her
If Kelsey would ask about it, then i would tell her.
With only having
one big test so far, i would like to wait and see what other tests they do, and then after that we could tell her.
Thanks very much tug!!!
Your family and Kelsey will be in our thoughts and prayers.
Now, my one suggestion is to sit down with your doctor and be frank. Tell him that you WILL be kept in the loop, and you WILL be apprised of what his current theories are and what the next steps are and WHY.
Do NOT let them just drag you through a bunch of tests without explaining WHY they are doing this test and WHAT they will do based on the results.
You and your daughter are always entitled to the Why's and What's of her treatment. The hospital patient relations folks can also help here.
While he does not have to consult with you, he does have an obligation to keep you informed.
Also, you should seek pain relief for her while they diagnose what is happening. Pain management is a perfectly reasonable request and one they should be willing to accomodate.
As contrary as this is to logic, your insurance company can be a good advocate. They don't want to pay for all of these tests if they are just "shotgunning" the diagnosis. They have staff in place that will quickly cut through the red tape and BS at the doctors office.
Lastly, don't be afraid to tell the doctor that you are going to seek treatment elsewhere and expect him to fully cooperate by providing any and all required and requested information to them in a timely fashion. Better yet, ask for a full copy of her records to take with you.
Any more tests that the two different doctors do, and I will MAKE THEM explain to us what are these test for, and what are you looking for, OR what do you expect is wrong with her....If this doctor that's checking for cancer doesn't explain more, then i will fire him...But were probably going to look for another doctor after the holiday any way.
I'm suppose to have the best insurance that you can get, BUT it took them 11 days to approve some medication that cost over $140 a bottle, and yes I'm looking for them to say they won't approve certain tests... and if that happens then I'll have to pay for the tests, and it cost A LOT to have this insurance and they should not take that long for medication.
Thanks very much!!!
Add about 4 more to the prayer squadron. Bill, I'll tell you now, I found great comfort in knowing my TBN friends were praying, both when my wife had a brain aneurysm rupture 2 years ago, and when I had a heart attack and subsequent open heart surgery last November. When I read through the entire thread, I nearly wept at the trials your family and specifically your daughter have experienced thus far. I won't forget to offer prayers to the most high God on your behalf. One of my 3 granddaughters' name is Kelsey. You and your's will be on our minds constantly. PM me some time if you'd like. May God continue to bless in this situation.
Jeff
...by His stripes we were healed.
I hope you and your wife are doing fine now, and i will keep you two in my thoughts & Prayers!
Yes I'm glad that
TBN friends are praying, and
many have gave me great advice
I'll send you a PM sometime when i get caught up on a dozen others
I have a frame on my wall that says
With His Stripes We Are Healed!!!! and that's the truth, we just need the faith!
Thanks very much Jeff!!!
I had the conviction this morning that I have been straying into the same area that Job's well intended friends strayed into by suggesting this and that. So I am resolved to pray for you, Kelsey, your wife and your doctors and quit my meddling.
2manyrocks,
Your just trying to help by suggesting this and that. (JMHO)
On something important like this, I need ALL Prayers, advice & experience that others have had with doctors in a situation like this
I don't like the way that
most doctors act in a situation like this, and i will not allow them to keep info. from us anymore....When i had my 3 wrist surgeries in less than 3 years, I wore a cast the whole time and it was from my fingers to my elbow... and he should have done it all in one surgery...BUT he made more money by doing three, and he wants to do another major one right now.
Thanks very much!!!
